Double Jeopardy: HIV-Positive Wives Caring for Their HIV-Positive Spouses in Accra

Abstract

Given improved medical treatment, AIDS seems no longer like a death sentence in many countries. AIDS patients live longer and are expected to be given the necessary care and support. This study explored the experiences of HIV-positive wives caring for their husbands living with AIDS. Using a qualitative method, 15 semi-structured interviews were conducted with women living with HIV/AIDS selected from the Fever Unit at the Korle-Bu Teaching Hospital in the Greater Accra Region of Ghana.  The study revealed that although participants demonstrated their willingness to give quality care, care experiences were closely linked to available resources. In other words, care was perceived by all participants as being synonymous with availability of family resources.  Insufficient resources (especially in terms of energy and financial resources) hindered the quality of care provided to HIV positive husbands. The challenge of insufficient financial, time, energy and other resources placed a lot of physical, health, economic and emotional burdens on participants and this affected their capacity to engage fully in daily activities. In conclusion, experiences of wives caring for their husband with AIDS influenced care practices in the home. Insufficient resources (especially in terms of energy and financial resources) hindered the quality of care HIV positive wives provided to HIV positive husbands. It resulted in a compromise of adequate and quality care not only to the sick husband but to the children as well. In the light of these findings, it was recommended that there should be sensitization or education on effective Family Resource Management; stigmatization and fear of HIV/AIDS by the Family and Consumer Sciences Outreach Program, HIV/AIDS advocates, Ghana Health, Ghana AIDS Commission and other relevant stakeholders Further research could also be conducted using a larger sample size to gain insight into the challenges of HIV positive wives when caring for their HIV positive husbands.

Keywords: HIV, Wives, Husbands, Care